Happy Labor Day

Since leaving my job for medical reasons, I can’t even count how many times I’ve heard that I’m so lucky to be able to stay home every day and not have to work anymore. Every time I hear this, though, I feel sick inside.

In one way, they’re right – I am lucky… Lucky I’m not killing myself anymore by going to work with a serious illness; lucky I’m not putting both myself and other people in danger just to get there and back; and lucky I’m not hurting the business or even patients by not functioning effectively enough to maintain my job. Unfortunately, there are some people with chronic illnesses who don’t have that same choice. So yes – I am extremely lucky in that sense.

However, not working is also a huge burden – on my family, on my finances, on my physical and mental health, on my self-esteem – on pretty much everything in my life. I would do almost anything in the world to feel better and get myself back to working – I’m trying anything and everything I can to hopefully get back there one day.

This isn’t an extended vacation – this is chronic illness.

I’ll trade you non-stop doctor and hospital visits, medical tests that are painful, surgeries that don’t fix the problem, being referred to psychologists and having people question your sanity, the inability to eat without being in pain or sickness, disability and insurance denials, being called a drug seeker, and being judged by nearly all of society just to go back to work.

Hope you don’t mind if chunks of your hair fall out, or that you pass out nearly every single time you have to take a shower. I hope that you’re not afraid of needles. You won’t mind having some brain fog, would you? It’s when you can’t remember anything – good luck doing my homework and writing that paper for me.

Oh, you also have some errands to run just to get the necessities of course but don’t forget the fact that you can’t drive anywhere by yourself. Your friend’s having a party that’ll you’ll have to miss and your other friend is mad at you because you don’t hang out with them enough. Those are the only two friends you have left though because no one else cared to stick around, not even most of your family.

Also, don’t forget to take those 13 different medications at different times throughout the day. Heads up – some make you really, really sick, others make you feel really tired and unable to function, and some keep you up all night. You can’t have any pain meds, though, because then people will just think you’re an addict – you didn’t need them anyways, right? Again, I’ll gladly trade places if you’d like – since I’m so lucky that I can’t work.

Being able to work is a huge privilege,

although many “healthy” people tend to forget this.

For the chronically ill, Labor Day is often just another reminder of what we many of us have lost to our illness. So when you’re off celebrating tomorrow, don’t just be grateful for having a day off- be grateful for your health giving you the opportunity to do so and please be thoughtful of those who may not have that same chance.


15 thoughts on “Happy Labor Day

  1. jcharnas says:

    The love is right here. You are my favorite blogger, and I see my history in your struggles. I can still work, but there were time in my life when I thought I might lose that, and it was awful. You are astoundingly brave, and I think of you often. You nailed it with this post, and I’m going to put it on my personal page and my book’s page. Hang in there. Your fighting spirit is admirable. And it bears repeating – the love is right here.


    Liked by 2 people

  2. RachelMorristhemyastheniakid says:

    I had a paramedic tell me once I was so lucky not having to work, plus a load of other derogatory comments about living on benefits etc. Seeing though I was very unwell at the time having called 999 as it was an emergency I was devastated to hear these words at one of the worst times in my life. I am gutted that at the time I didn’t have the strength to complain. I wish I had the strength at the time to tell him to go f**k himself however I didn’t.

    Your post is 100% right. I would lose my chronic health in a heart beat if I could return to the life I have lost.

    Liked by 1 person

    • The Undiagnosed Warrior says:

      That’s horrendous and unprofessional. I know many people say it in jest and have no idea how truly bad many of these chronic illnesses can be, but a little common sense goes a long way. I actually had a neighbor tell me I abused the system by PAYING for medicaid when I first got sick so I could afford my healthcare and testing. Meanwhile he scammed his insurance company.

      Liked by 1 person

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