Since restarting my search for a diagnosis in February of last year when I started at the research hospital, I’ve been through a lot of doctors and a lot of medical testing.
Well, it got me thinking – Just how many tests have I done?
Being as OCD as I am, I decided to look through my list of notes and test results so that I could write it all down (in list form of course). Eventually, I’m hoping to upload some of my test results – along with an UPDATED diagnoses list – for comparison.
Doctors I’ve Visited
Primary Care Doctors:
- PCP-A
- Scarred and butchered my scalp biopsy (with no anesthetic, by the way), forgot to order tests, couldn’t fill out paperwork, the office staff was horrible, the list goes on and on…
- PCP-B
- Told me she’d review my record and call me with a plan- never called after multiple attempts over 2 months. I went as far as to file a complaint with the office manager, who promised me at least a call, which never happened.
- PCP-C
- Told me I was simply dehydrated and depressed, despite having initial diagnoses at the time.
- PCP-D
- FINALLY – a good PCP and my current doctor.
Medical Specialties:
- Vascular Surgeon #1
- Vascular Surgeon #2
- Vascular Surgeon #3
- Neurology #1
- Neurology #2
- Dermatology #1
- Dermatology #2
- Cardiologist
- Electro-cardiologist
- Immunologist
- Rheumatologist
- ENT/Allergy
- Gastroenterologist
- GI surgeon
- Urologist
- Gynecologist #1
- OGynecologists #2
- Physical Therapist
- Optometrist
- Psychologist
- Neuropsychologist
- Chiropractor
- LCSW
- Nutritionist
Procedures (Under Sedation)
- April 2015 – Esophageal Dilation and Internal Biopsies
- May 2015 – Endometrial Ablation
- December 2015 – Venography
Medical Testing and Imaging
2015:
March
- CT Abdomen & Pelvis
- Pulmonary Function Tests – Pre & Post
- Spirometry
- Allergy Test – Skin Scraping
April
- Abdominal X-Ray
- Tailored Barium Swallow
- Colonoscopy & Endoscopy
- X-Rays of both Ankles
May
- Abdominal Ultrasound RUQ
- Gastric Emptying Study
June
- CT Angiogram Abdomen & Pelvis
- Electroencephalogram (EEG)
- Spirometry
- Fecal Cultures
July
- Electrocardiogram (ECG)
- Echocardiogram with Agitated Saline
August
- Skin Biopsy
- Cardiac MRI
- Exercise Stress Test
- Holter Monitor
- Spirometry
September
- X-Ray of Spine
October
- Sitz Marker Study
- Upper GI Series
- Small Bowel Follow Through
- Hydrogen-Methane Breath Test
- Spirometry
- Abdominal X-Ray Supine
November
- Hepatobiliary (HIDA) Scan
- Electrocardiogram (ECG)
- Holter Monitor
- Echocardiogram
December
- Venography
2016:
January
- Renal Ultrasound
February
- Anorectal Manometry
- MRI Abdomen
March
- Tilt-Table Test
- Electrocardiogram (ECG)
April
- MRI Pelvis
- MRI Head/Brain
May
- Transvaginal Ultrasound
- Renal Ultrasound
- Electroencephalogram (EEG)
June
- Transvaginal Ultrasound
- CT Maxillofacial
Blood and Urine Screening
- Urinalysis and Urine Cultures
- Routine Blood Screens:
- Comprehensive Metabolic Panel (CMP)w/ and w/o eGFFR
- Complete Blood Count (CBC) w/ and w/o Differentials
- Electrolyte Panel
- Liver Panel
- Kidney Function Tests
- Celiac Disease Panel
- Thyroid Screens
- TSH
- TSH 3rd generation
- T4
- Electrolyte Panel
- Lipid Profile
- Cholesterol Levels
- Serum Vitamin Assays
- Vitamin D
- Total
- D3
- D 25-Hydroxy
- Vitamin B12
- Folate/Folic Acid
- Calcium
- Vitamin D
- C-Reactive Protein
- Antinuclear Antibody Panel (ANA)
- Serum Iron Testing
- Iron and Iron Binding Capacity
- Rheumatoid Factor
- Creatinine with eGFR
- Erythrocyte Sedimentation Rate (ESR)
- Amylase
- L-Creatinine
- More Specialized Blood Screening:
- Antibody Screening
- IGA
- IGE
- IGM
- IGG
- CK
- CS
- Tissue Transglutam AB IGA
- IGE-RAB, Chronic Uticaria
- IGE Receptor Ab
- DNA AB (DS)
- anti-RO/SSA, and Anti-LaSSB
- CCP Antibodies
- Beta-2 glycoprotein IgGG and IgM
- Cardiolipin
- Sjorgen’s SSA
- B. burgdorferi Screen Rflx
- B. burgdorferi Ab, IgG,IgM
- B. burgdorferi Ab, IgG (WB)
- B. burgdorferi Ab, IGM (WB)
- Growth Hormone Somatotropin Test
- Cortisol (AM)
- Blood Clotting Tests
- Prothrombin Time (PT)
- International Normalised Ratio (INR)
- Dilute Russell’s Viper Venom Time (dRVVT)
- L-Protein Electrophoresis
- Nutritional Panel w/ Prealbumin
- Blood Typing
- Antibody Screening
All I can say is you have been one sick busy girl! Have you gone to a naturopath or holistic practice at all? It may be worth the trip!
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I did, they wanted $3,000 in cash up front. I am seeing a chiropractor though who is affordable and believes in holistic methods.
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That’s good.. the two I see are much more manageable than an LLMD which can cost about that much. It really is ridiculous! I’ll have to post one of the three letters I am composing to the three different MD’s that I went to see and all said I didn’t have Lyme.
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Yes please post. I’d love to read. When I first started looking for a diagnosis, I called a couple llmd’s – they were nuts. I can’t remember what they quoted me but I remember thinking it was easier to live in pain that afford even a single consult.
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Holy mackerel! No wonder you’ve been taking a bit of a break from your regular blogging. I do hope that they find some more concrete answers for you soon. Hugs
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Thank you. Between appointments and school – plus illness – I can barely think straight haha
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Hang in there! You’re doing it better than alot!!
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I really am. I’m tired and worn out but I’m still here fighting. How are you doing these days?
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Now I’m tired just reading that…
And curious about how many I’ve had. Though I don’t think I’ve done as good a job about notes and such so I don’t think I can even compile a list like this.
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Because of the extent of my appointment schedule, I have no choice but to be this organized. Add in the actual consults and follow-ups with doctors, I easily can turn my patient schedule into a full time job lol
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I really should be more organized, it would be much better for my health. You’ve inspired me to actually get all of my stuff sorted through and figured out so I can compile a list like this!
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I got ideas if ya need them.
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I will let you know! Thanks 🙂
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What was the Viper venom test? Where you bitten by a snake? Other than that I am going through many of the same tests. I’m pretty sure I have mold in my house now. Am looking into that currently with bloodwork.
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Luckily, no viper bite was needed but they did inject my blood with viper venom in a labratory to see how long it took to clot. I have a video saved on YouTube I think. I’ll try and post it.
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just posted some information for you 🙂
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