While I can’t say that 2015 was a “good year” for me or my health, and there were a lot of disappointments, frustrations, and a rollercoaster of emotions that come with being a professional patient, I did get farther than I ever had been in my search for a diagnosis.
That has to mean something right?
Although some of you may have seen this on my personal Facebook, most of you have not, and thought it would be worth sharing here as well so you can get an idea of what my 2015 really looked liked.
After looking at my year in review, I noticed I only had pictures from many years ago. Mostly, I’ve kept photos of this year off my personal facebook. But I think it’s important to share what my year really looked like.
I’ve had hundreds of medical appointments this year: doctors visits, medical tests, procedures, etc. I’ve been on 30 different drugs to help my symptoms. I’ve been told by doctors, insurance, and disability that I’m not sick. My diagnoses have changed a number of times and I’ve stumped a number of doctors, many of them looking into Google just to understand my disease.
I don’t post this for pity. In fact, I post for the opposite. Despite losing my job, friends, and overall quality of life this year, I’ve gotten (almost) straight A’s in school. I’ve advocated for patients just like me. I’ve talked with numerous people in and out of the U.S., some of who are worse off than me and many who have fought some of the same battles. Some of them lost their life to their illness.
This year has been hell, for me and those that I love, but I’ve come a long way and have learned so much. I’ve learned that I am strong and can survive almost anything.
I became a warrior.
I know there’s still so much more to do and other things to look into but I really feel like the new year will bring with it all the remaining answers that I need to solve my medical mystery. This has been a hard journey but I’m ready to start moving forward and hopefully regain my life in 2016.