Unless you live with an invisible illness,
you have no idea how hard it is to just to survive through the day.
The constant battle against your own body.
Fighting each day to “live”, despite being sick.
Not just today – but every day.
The hardest part of having a chronic illness, though, isn’t being sick.
It’s overcoming the way others perceive chronic illness.
It’s the lack of understanding and compassion.
It’s the judgment.
I normally wouldn’t share a conversation like this,
but seeing as though today marks the start of Dysautonomia Awareness Month,
on top of the fact that Invisible Illness Week is still going on,
I felt it was appropriate.
So last night I asked a few of my friends and family to share the following picture on Facebook to support the beginning of Dysautonomia Awareness Month.
Quite a few friends did and I was really honored that they would
support both me and this cause.
However, shortly after one of my friends posted this picture to their Facebook page there was already a relatively snarky remark left.
Granted, the person who said this is not a close friend of mine and I don’t know him very well, but we are acquaintances and I assumed there was at least mutual respect. In fact, I’ve never had a problem with him and honestly took the post as just him not knowing anything about what dysautonomia was. Not a lot of people have even heard about it, let alone understand it. So I did respond back to his post to inform him that both POTS and dysautonomia are not the same as having an anxiety disorder. Who would have thought something so harmless would turn into a debate back and forth.
The rest of the conversation goes like this:
Him: Either way, it’s stimulus through outside sources.
Me: Not true. Stimulus in POTS is internal.
Him:The internal can only be influenced by b the outside and vise verse. Good try though.
Me: How is blood circulation caused by the external? Enlighten me
Him: Not really if the definitions are looked at.
Me: What definitions?
Me: POTS isn’t caused by stress or influenced by stress.
Me: It’s influenced by standing. It’s orthostatic intolerance
Him: But caused by outside sources such as any neurological disorder.
Me: In not trying to argue, but saying POTS is anxiety is not only inaccurate but part of a bigger problem.
Me: The real victims are the people misdiagnosed because people don’t see the difference.